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Survivors of 1980s AIDS crisis reveal what happened to them

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In Honor of World AIDS Day

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From the role of lesbians to the vanishing of whole neighborhoods, real LGBTI people share their experiences

by Joe Morgan

Survivors of the 1980s AIDS crisis have shared accounts of their experiences.

As the UK celebrates LGBT History Month, users of Reddit revealed what it was like to be living in what felt like a constant state of tragedy.

Real LGBTI people remember the confusion, the lack of information, the lack of support from the government because of the suffering from the virus known only at the time as GRID (gay-related immune deficiency).

‘I’m a 62-year-old gay man. I thankfully made it through the epidemic that started in the early 80s and went right through the mid-90’s. You ask what it was like? I don’t know if I can even begin to tell you how many ways AIDS has affected my life, even though I never caught the virus,’ one user said.

‘By the early 80s, I had what I would consider a really large circle of friends and acquaintances and once the epidemic really started to hit, it was not uncommon to find out three, four or more people you knew had died each month. We set up informal and formal support groups to look after our friends who took sick. Feeding them when they would eat. Changing them. Washing them. Acting as go-between with families who “were concerned” about their sons, nephews, brothers, etc., but wouldn’t lend a hand to help because AIDS was, you know, icky.

‘After they passed, there were memorial services to plan with no real time to grieve because when one passed, you were needed somewhere else to begin the process all over again.

‘I kept a memory book/photo album of everyone I knew that died of AIDS. It’s quite large to say the least. Who were these guys? These were the people I had planned to grow old with. They were the family I had created and wanted to spend the rest of my life with as long as humanly possible but by the time I was in my late 40s, every one of them was gone except for two dear friends of mine.

‘All we have left of those days are each other, our memories and pictures. I hope that statement doesn’t come off as pitiful though. I am fit, active, healthy and you know what? I enjoy every single day of my life. I enjoy it because most of my friends can’t. In my own personal way, I want to honor their lives by living and enjoying mine.’

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Another user said: ‘It was flat out scary. every guy you met was like a possible time bomb. especially the early period when we knew very little about it – didn’t know if you could get it by kissing, by holding hands…

‘Then lots of your friends or friends of friends get sick and sicker and then die. And you never ever quit being really really fucking pissed off about the whole thing. I’m alive today due to sheer randomness.’

And another said: ‘If you were living in the Castro in San Francisco, everyone in the neighborhood was gay… So it wasn’t just your friends that were dying, it was your whole neighborhood. One day your mailman would be replaced, the next day that flower shop was gone… You wouldn’t be invited to the funeral, so it was just like people were disappearing.’

‘It was madness. It was terribly cruel,’ another Redditor said. ‘It was inexplicable and unexplained, for a very long time. Research was underfunded, and in many cases large institutions and public figures rooted for it to be happening. People died suddenly of unexplainable things. Toe fungus! Tongue thrush! Rashes. Eyes welling up with blood. Horrible shit.

‘Everyone knew it was hitting gay men, nobody knew what it was. They called it the gay cancer. People were very superstitious. I had handfuls of groceries and man lectured me on not pressing the elevator buttons with my nose because I could catch AIDS from it. Yes. That happened.’

A lesbian of the era said: ‘While I was not ‘at risk’ (per se, we know more these days), we all lost many good friends. It is true that there is a somewhat mystifying (to me) separatist attitude between some gay men and lesbians, especially back then, this tragic time really brought us together.

‘Sitting at the bedside of a terminally ill friend, and just holding their hand when everyone else was just terrified, was a gift I was one of those willing to give.

‘No one should die alone, and no one should be in the hospital on their death beds with family calling to say “this was gods punishment”. My friends and I, men and women, acted as a protective layer for ill friends, and companion to mutual friends juggling the same, difficult reality of trying to be there, and be strong when we were losing our family right and left. Difficult times, that should never be forgotten.’

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Another Redditor paid tribute to the role of lesbians, calling them ‘every bit as heroic as soldiers on the front lines of any war’.

‘These women walked directly into the fire and through it, and they did not have to. And that they did it even as some of the gay men they took care of treated them with bitchiness, scorn, and contempt.

‘It was, at the time, not at all unusual for gay men to snicker as the bull dyke walked into the bar with her overalls and flannels and fades. Much of the time, it was casual ribbing which they took in stride. But it could also be laced with acid, especially when lesbians began gravitating toward a bar that had until then catered largely to men.

‘When the AIDS crisis struck, it would be many of these same women who would go straight from their jobs during the day to acting as caregivers at night. Because most of them lacked medical degrees, they were generally relegated to the most unpleasant tasks: wiping up puke and shit, cleaning up houses and apartments neglected for weeks and months. But not being directly responsible for medical care also made them the most convenient targets for the devastating anger and rage these men felt – many who’d been abandoned by their own family and friends.

‘These women walked directly into the fire. They came to the aid of gay men even when it was unclear how easily the virus could be transmitted. Transmission via needlestick was still a concern, so they often wore two or three layers of latex gloves to protect themselves, but more than once I saw them, in their haste and frustration, dispense with the gloves so that they could check for fevers, or hold a hand that hung listlessly from the edge of a bed whose sheets they had just laundered.

‘They provided aid, comfort, and medical care to men withering away in hospices, men who’d already lost their lovers and friends to the disease and spent their last months in agony. They’d been abandoned by their own families, and were it not for lesbians – many if not most of them volunteers – they would have suffered alone. And when there was nothing more medicine could do for them and their lungs began to fill with fluid, it was often these same women who’d be left to administer enough morphine to release them, given to them by the doctor who had left the room and would return 15 minutes later to sign the certificate (a common practice at the time).

‘I knew a woman around that time who’d had at one point been making bank in construction. But at the outset of the AIDS crisis she had abandoned her career to pursue nursing instead, and was close to her degree when we were hanging out. She was a big, hearty drinker, and fortunately so was I. We’d been utterly thrashed at a bar once when someone whispered a fairly benign but nonetheless unwelcoming comment about her. Middle fingers were exchanged, and afterwards, furious and indignant, I asked her, Why do you do it? Why did you abandon a career to take care of these assholes who still won’t pay you any respect?

‘She cut me a surprisingly severe look, held it and said, “Honey, because no one else is going to do it.” I remember feeling ashamed after that, because my fury and indignation weren’t going to clean blood and puke off the floor; it wasn’t going to do the shit that needed to get done.

‘HIV killed my friends, took my lover from me, and tore up my life. During that time, I did what I could. But nothing I did then or have ever been called to do in my life puts me anywhere near the example set by the lesbians I knew in the 80s and 90s. I’ve felt obligated to remember what they did, and to make sure other people remember it too.’

Complete Article HERE!

Female Sexual Dysfunction Is A Fictional Disorder

Name: Sharon
Gender: female
Age: 30
Location: PA
I’ve been reading a lot lately about FSD, or female sexual dysfunction. Is there such at thing? It strikes me as a fictitious “ailment” that is being promulgated to sell pharmaceuticals to unsuspecting women. What are your thoughts?

I share your skepticism. I think that, for the most part, female sexual dysfunction, or FSD, is a fictional disorder. I also think pharmaceutical companies are trying to hit on a female version of Viagra to treat this imaginary disorder so they can make a bundle, just like they did with as the male version.

body as art

So much of female sexuality is caught up with the cultural context of a women’s role in society — family obligations, body image and patriarchal views of marriage, etc. For the most part, men aren’t nearly so encumbered. So when one talks about female sexuality, particularly when the notion of a condition or a disorder arises; ya gotta ask yourself, what’s going on here?

I too have been noticing a lot of discussion in the popular culture lately about female sexual dysfunction. My first response is to ask myself, who’s raising the issue and why? Sure some women, like some men, experience difficulties in terms of desire, arousal and orgasm, but what of it? Is it a syndrome? Is it really a dysfunction? I personally don’t think so. The sexual difficulties most people experience can be explained and dealt with in a less dramatic way then with drugs?

And here’s an interesting phenomenon; the repeated appearance of the term female sexual dysfunction in the media lately actually gives the concept legitimacy. I’m certain the pharmaceutical industry is hoping that it will. If they can make the connection in the public mind between what women experience in terms of desire, arousal and orgasm concerns and what men describe as erectile dysfunction, then most of the work is done. In other words, I think the entire effort is a marketing ploy.

female sxualityI think we can safely say that, in order to determine what female sexual dysfunction might be, one has to clearly understand what a “normal” sexual response is for a woman. This is where we traditionally run into problems. Sex science is notoriously lacking in this endeavor. One thing for certain, although both women and men have a discernable sexual response cycle, a woman’s sexual response is not the same as a man’s. Even though we can’t say with certainty what “normal” is, therapists are famous for turning difficulties into disorders. And once you have a disorder it becomes the basis for developing a drug therapy. So you can see how this becomes a self-fulfilling prophecy.

Currently there’s a real buzz among clinicians concerning the efficacy of Addyi, the so-called “female Viagra”. But most sexologists, myself included, are unimpressed. Basically, the drug in question is an antidepressant. When I heard that, red flags began to fly. Antidepressants are notorious for their adverse side effects, especially in terms of sexual arousal in both men and women. The second problem with the study was the whole notion of desire and distress. Lots of women experience diminished sexual arousal but are not distressed by it. But if there’s no distress, clinically speaking, then it can’t be considered a disorder. You see where I’m going with this, right? If there’s not a “disorder” there’s no need for a pharmaceutical intervention.FUCK

According to the research some of the women in the clinical studies leading up to the approval of the drug claimed they were less distressed by their “condition,” Hypoactive Sexual Desire Disorder, than they were at the beginning of the study. According to clinical trials of Addyi held in 2013, only 8% – 13% of the women experienced “much improved” sexual desire and only about 2 more satisfying sexual encounters per month were had. In other words, when behaviors were studied, the actual number of satisfying sexual episodes reported by these less distressed women hardly changed of all. This indicates to me that the antidepressant helped lift the spirits of the distressed women, but did nothing to increase their satisfaction with their sexual outlet.

Twice the FDA rejected Addyi for its severe side effects and marginal ability to produce the effect that it is being marketed for. And despite the fact that the drug is now available, those side effects still exist. Women who take the pill are likely to experience dizziness, nausea, drowsiness, fainting spells, and falling blood pressure. Coupled with alcohol and even hormonal contraceptives the odds of these potential side effects occurring increase. Persons with liver ailments, or taking certain other medicines, such as types of steroids are also at higher risk. On the other hand Viagra has very mild side effects that may include headaches, indigestion, blue-tinted vision and in some cases a stuffy nose.

While a man can pop Viagra an hour or so before he plans to have sex, women who are looking for increased sexual desire need to take Addyi daily for up to a month before they should expect to see any effects.

Good luck

These Volunteers Give Handjobs to the Severely Disabled

By Nelson Moura and Yun jie Zou

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Hand Angels helping Andy from his wheelchair into bed.

Andy is a muscular dystrophy patient who lives with his parents in southern Taiwan. Due to his severe physical disability, he was home-schooled and couldn’t leave his house alone, so never really had the opportunity to develop either an active social life or a romantic relationship.

When the Taiwanese NGO Hand Angel—an organization promoting the sexual rights of disabled people—first spoke to Andy, they realized this situation meant he’d also never been able to have a frank conversation with anyone about his sexuality. And as a young gay man who didn’t want to speak to his parents about his feelings, this wasn’t exactly the healthiest situation to be in.

So, over the course of a few months, representatives from the NGO counseled Andy online, helping him to understand his own sexuality and place in the world. Next, they “smuggled” him out of his house and took him to a motel for a handjob.

Taiwan—officially known as the Republic of China—has one of the best health systems in the world; its million or so disabled citizens receive some of the most thorough medical attention you’ll find, including everything from long-term care to traditional herbal medicine. What they don’t receive from this system, however, is any kind of aid when it comes to slightly more intimate issues, namely: orgasms.

It was for this reason that a group of social campaigners and volunteers took it upon themselves to create Hand Angel, an NGO whose main service is giving handjobs to the severely disabled. Members say that their work raises awareness of the fact that disabled people are often depicted as desexualized—as well as having their sexuality constantly neglected—despite the fact they share exactly the same desires as anybody else.

In the Netherlands, the national health system provides a grant scheme for people with disabilities to receive public money to pay for sexual services up to 12 times a year. In Taiwan, sex remains a taboo, and some Buddhists—the sovereign state’s primary religion—believe that someone suffering from a disability means they’re paying for bad deeds in a past life. So not the best mix for those like Andy, really.

“I can’t tell my parents that I also have sexual desires, and I can’t come out of the closet in front them,” he told me. “My family’s care puts lots of pressure [on me] and sabotages me from normal romantic relations.”

Vincent, the 50-year-old founder of Hand Angel, lost his legs to polio and says his disability allows him to better empathize with applicants’ needs, without any of the patronization disabled people can sometimes face. He emphasized that “disabled people share the same physical and emotional needs as any others, and therefore should have the right to pursue them.”

In order to decide who’s entitled to use their services, Hand Angel first assess an applicant’s level of disability. The person has to be recognized by the government as having a serious physical impairment, but can’t be mentally disabled. Once they’re cleared, the service is totally free, but each applicant can only receive three bouts of sexual stimulation.

Volunteers—the group of 10 people actually giving the handjobs—come from varied backgrounds; some are gay, some are straight, some are disabled, some are PhD students, some are social campaigners and some work in the media. It’s made very clear to me that these volunteers only use their hands for second-base kind of stuff—that hugging, caressing, and kissing on the face are all fine, but anything penetrative (fingering, oral sex, vaginal sex, and anal sex) is not.

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The hands of Hand Angel volunteers

When Hand Angel took Andy to the motel, the volunteer caressed him thoroughly and gave him a handjob. He described the intimacy being so intense that, for a minute, he believed he was in love. He knew it was only temporary, of course, but the experience provided him with an emotional connection he’d never felt before.

This is part of Hand Angel’s mission: not just providing a sexual service, but also bringing forth an emotional and social transformation in applicants.

“[Andy] was very introverted before, and didn’t really know how to interact with people,” said Vincent. “However, through months of talking online, I discovered something changed inside him. When our group was reported by the media and got lots of criticism, I saw Andy joined the public debate and argued with those [critical] internet users, trying to illustrate his opinions.”

In Taiwan, where a discussion of sexuality is restrained by strict moral codes, there was also plenty of mockery leveled at Hand Angel. Internet users starting posting comments like: “Do they also offer ‘Mouth Angels?'”; “I’m retarded; can I apply for Hand Angel service, too?”; and “Only three times in a lifetime?”

There even appeared to be negativity on an official level. The executive secretary of the Taipei United Social Wealth Alliance, Yi-Ting Hu, commented on the NGO, saying: “Speaking from personal opinion, I don’t think we need to bring up disabled people’s sexuality as an independent issue. There are more important and urgent problems we need to deal with. Don’t you think if you advocate their sexual rights, it is like another form of discrimination?”

Of course, he seemed to only be proving Hand Angels’ point; to suggest that advocating a disabled person’s sexual rights is a form of discrimination is, first, patronizing in itself, and secondly, just completely bizarre—how is consensually receiving a handjob in any way discriminatory?

Andy summed it up: “I didn’t feel I was the target of pity. The whole process was full of respect and equality. This might be deemed as controversial by society, but as long as you’re willing to look into it, what we desire is no different from others. Just ask yourself: do you need to consult your parents before having sex?”

Complete Article HERE!

What’s Your True Sexual Orientation? The Purple-Red Scale Is Here to Help You Find Out

The Purple-Red Scale

By Nicolas DiDomizio

When reality TV dumpling Honey Boo Boo Child declared that “everybody’s a little bit gay” three years ago, she was unknowingly taking a page out of sexologist Alfred Kinsey’s book. His famous Kinsey scale, which identifies people’s levels of same- or opposite-sex attraction with a number from zero to six (zero being exclusively straight, six being exclusively gay), has been a favorite cultural metric for measuring sexual orientation since it was created in 1948.

But even though asking someone where they fall on the Kinsey scale is now a common dating website opener, the Kinsey scale is far from an all-inclusive system. As Southern California man Langdon Parks recently realized, the scale fails to address other aspects of human sexuality, such as whether or not we even care about getting laid in the first place.

So Parks decided to develop a more comprehensive alternative: the Purple-Red Scale of Attraction, which he recently posted on /r/Asexuality. Like the Kinsey scale, the Purple-Red scale allows you to assign a number from zero to six to your level of same-sex or heterosexual attraction, but it also lets you label how you experience that attraction on a scale of A to F. A represents asexuality, or a total lack of interest in sex “besides friendship and/or aesthetic attraction,” while F represents hypersexuality.

Pick your letter-number combo below:

What's Your True Sexual Orientation? The Purple-Red Scale Is Here to Help You Find Out

Parks told Mic that he came up with the idea for the Purple-Red scale after learning about asexuality and realizing that he was a “heteroromantic asexual, or a B0 on the scale” — someone who is interested exclusively in romantic, nonsexual relationships with the opposite sex.

“I then thought, not only are there sexual and asexual people, [but] there are different kinds of sexual people as well,” he said. “I thought of adding a second dimension to Kinsey’s scale to represent different levels of attraction.” (As for the color scheme, Parks opted for purple because of its designation as the official color of asexuality, while “‘red-blooded’ is a term often used to describe someone who is hypersexual.)

The scale represents all possible degrees of sexual attraction, from those who only want to have sex when they’re in a relationship to those who are ready and rarin’ to go pretty much whenever. For instance, if we use Sex and the City as an example, Carrie would likely be an E1, while the more prudish Charlotte is probably more of a D0 and uptight Miranda an E0. Our beloved bisexual, sex-crazed Samantha? Totally an F2.

What's Your True Sexual Orientation? The Purple-Red Scale Is Here to Help You Find Out

Busting myths about sexual attraction: Back in 1978, Dr. Fritz Klein tried to update the scale to make it more inclusive of a wider range of sexual experiences, as well as sexual fantasies. His final product, the Klein Sexual Orientation Grid, came out a bit clunky, however, and was still based on the assumption that everyone using it was capable of experiencing sexual attraction in the first place.

Parks’ Purple-Red Scale accounts for those who experience sexual attraction at different times in different contexts, as well as those who don’t experience it at all. That’s notable in part because although asexuality is not exactly rare — according to one estimate, approximately 1 in 100 people are asexual, though they might not self-identify as such — it’s one of the most widely misunderstood sexual orientations, with many people assuming that asexuals are just closeted gay people or too socially awkward to have sex.

But asexuality is a legitimate sexual orientation with many unique shades of its own. As the Huffington Post reported back in 2013, many asexual people don’t just identify as asexual. For instance, they can also self-identify as “heteroromantic” (meaning they’re interested in having exclusively romantic, nonsexual relationships with members of the opposite sex) or “demisexual” (meaning they’re open to experiencing sexual attraction within the context of a strong emotional connection or committed relationship).

“Some people don’t want to have sex in a relationship at all, and others view it as the whole point of the relationship,” Parks told Mic. “Yet others typically start off having no feelings but build them up over time. Still others don’t want sex for themselves, but are still willing to have it for other reasons,” such as to procreate or make their partner happy.

That’s why Parks’ Purple-Red scale is so important: It acknowledges the shades of grey in sexual orientation and sexual interest. Both, he explained, are fluid and largely dependent on context.

Why do we need scales in the first place? While the Purple-Red scale is helpful in classifying sexual attraction, some people might argue that we don’t need a cut-and-dry system for classifying our sexuality in the first place. If the burgeoning “label-free” movement of sexual fluidity is any indication, coming up with clinical labels like “E2” or “B0” might be purposeless or even counterproductive to achieving true sexual freedom.

But Parks believes that having a simple tool like the Purple-Red Attraction Scale can be useful, particularly as a way to improve communication in the dating world. “The scale was designed to provide a quick and easy way of scoring a person’s view of relationships on forums and dating sites,” he said. Imagine, for instance, if you logged onto OkCupid and entered your sexual orientation as D5, instead of simply self-identifying as “gay,” “straight” or “bisexual.”

Parks also noted that the Purple-Red scale is a great way to match partners who have similar or compatible sex drives. “Attraction type is every bit as important as orientation,” he told Mic. “We see it all the time: John wants sex, sex, sex, while Jane doesn’t have the feeling right away.”

Because discrepancies in sex drive can cause problems in same-sex and opposite-sex relationships, Parks wants people to use the scale as a way to establish sexual compatibility right off the bat.

“Instead of relying on assumptions like ‘Oh, he’s a guy, go for it!’ or ‘She’s a woman, wait for it,’ people can now use their letters to describe their basic outlook on relationships,” he said.

“Attraction type is every bit as important as orientation.”

Perhaps one day, we’ll live in a world where we don’t need something like the Purple-Red scale to tell us about our own sexuality; a world where we don’t need to fit who we want to have sex with into boxes or spectrums or scales. But for the time being, whether you’re a B2 or an F5 or a D6, it’s cool that we have something like Parks’ scale to help us answer the nagging questions about sexual orientation that our culture keeps asking us to answer — and maybe it can help us find out a little bit more about ourselves.

Complete Article HERE!

When did sex become shameful?

By Hanna G Ruby

Once upon a time sex was enjoyed without shame, as a gift of God, Goddess, the Great Spirit – an act of joy, of devotion, something perfectly natural and wholly divine – all at the same time.  Once upon a time the goddesses were venerated as the embodiment of love, passion, and sex, which were considered holy when performed in reverence for and in service of the female divinity.

But the mindset of patriarchy killed off the Goddess more than five thousand years ago. She was constrained to submission at worst, or virginal purity and celibacy at best; her divinity denied. With that, the idea of sexuality as spirituality, as something inherently divine, was eradicated for all women – young and old. Indeed, for all men as well!  Sexuality was severed from spirituality and became its extreme opposite; sex was dirty, primitive, and instinctual (and feminine in nature), while spirituality was pure and clean and transcendent (and masculine in nature).

In the West, however, it was only from our Bible onward that sexuality became a sin, the means by which the devil could tempt mankind into damnation, a shameful necessity of physical gratification that was obscene and dirty. Only from our Bible onward, were women considered inherently sinful and destined for eternal punishment.

Even before Eve bit that apple, there was poor, feisty Lilith (born initially as one with Adam – “male and female created He them” says the first Biblical reference), who, according to legend, preferred to have sex on top. Lilith represents lunar consciousness (waxing and waning, death and rebirth), sexuality, body, and intuitive wisdom – all of which patriarchy degraded and denied. She got a terribly bad press.

Previously, the Goddess had ruled the mysteries of sexuality, birth, life, and death. Now the patriarchal God took control of life and death, and split procreation and motherhood from sexuality and “magic and mystery”. Lilith refused to submit and flew off in a rage. Until recent decades, she has been universally demonized as seductive, witch, outcast – the enraged, avenging goddess, wife of Satan.

Solar was split from lunar; psyche from soma or physical, corresponding to a general disassociation from the body. Mind and body, spirit and body, soul and body were split entities, and unequal. The body was inferior, an unfortunate necessity – together with its most basic of functions, sex; and it was associated with the feminine. (I once read an old text that described women as “bags of filth”. The males’ organs of excretion were not referred to.)

Male and female were unequal; spirit and nature were unequal. Man headed the chain of command – after God. As women, and as a culture, we have paid dearly for this division. The misogyny of the patriarchy affected all cultures in the last 2000 years, one way or another.

The fierce, sexual, independent-spirited wise dark goddess aspect of Lilith was replaced by submissive Eve, who was yet blamed for the whole messy business anyway. She was the sinful one, secondary to Adam, and cursed forever to give birth in pain. (Medieval midwives were sinning when they alleviated the pain of childbirth.)

As long as Eve is sinful and physical matter corrupt in any way whatsoever, our sexuality is compromised – and our liberation incomplete. This split must be healed.

I am proposing that sexuality and spirituality are aspects of the same thing; that the split between psyche and soma (the physical) is resolved in the energetic unity of a higher order. “We have lost contact with what unites them,” says Alexander Lowen in The Spirituality of the Body.  Sexuality is psychosomatic – and by that I mean, not that it’s some kind of illness, in the more common meaning of the word, but that it overtly operates on both the physical and the psychic level.

Where science and religion are finding rapprochement in the infinite wave world of quantum physics, we find fresh metaphors for the lost unifying element. Waves of sexual sensations that emanate from the body can be visualized as cosmic, psychic energy, high-frequency vibrations that bridge us to higher consciousness.

These metaphors indicate possibilities that have profound implications generally, and more so for aging women today.

Complete Article HERE!

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