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The Shaming of Sexuality: America’s Real Sex Scandal

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In early September, the Twitter account of Texas Senator and former Republican presidential candidate Ted Cruz “liked” a post containing explicit pornographic video content. Once noticed by other Twitter users, the news shot around social media; many were both shocked and amused by the public slip-up by the typically straight-laced Senator. For his part, Cruz blamed the error on a staffer, denying that he was the one who had liked the post.

Whether you believe this explanation or not, the idea of Cruz publicly revealing a pornography habit and preference is simultaneously absurd and infuriating. Both of these reactions are a result of Cruz’s staunchly conservative views on sex and sexuality. In 2007 as Texas solicitor general, he defended a law banning the sale of sex toys in the state, arguing that no right existed “to stimulate one’s genitals for non-medical purposes unrelated to procreation or outside of an interpersonal relationship.” Though he did not personally fight to preserve Texas’ anti-sodomy laws in 2003’s Lawrence v. Texas, his negative attitudes towards LGBTQ+ causes are well-established: He called the Supreme Court’s 2015 ruling in favor of marriage equality “fundamentally illegitimate” and supported North Carolina’s “bathroom bill,” referring to transgender women as “men” in the process. When pressed in an interview with CNN’s Dana Bash on the Texas sex toy law, Cruz backtracked on his previous position, calling the sex toy law “idiotic” and “a stupid law” before adding, “consenting adults should be able to do whatever they want in their bedrooms.” If Cruz truly feels that way, then his past attempts at legislation appear either opportunistic or self-contradicting.

Cruz is far from alone among politicians who have contributed to legislation and rhetoric against private consensual sexual practices. As stated above, it took until 2003 for the Supreme Court to strike down anti-sodomy laws, and, as of 2014, a dozen states still technically had those laws on their books. (In fact, several states have actually been stricter against sodomy than bestiality – including Texas, which has had an anti-sodomy law on the books since 1974 but only made bestiality a crime in 2017.) The sale of sex toys is currently punishable in Alabama by a fine of up to $10,000 and a full year in jail, and last year a US appeals court upheld a similar law in Georgia. Also last year, Utah Governor Gary Herbert declared pornography and pornography addiction a “public health crisis” via a signed resolution, continuing a long trend of political attempts to push back against pornography.

What is most interesting about these types of consensual sex-related laws and attitudes in the United States is that support for them seems to be in direct conflict with the amount of people who participate in said sex acts. Utah residents, for example, actually buy more internet porn per person than those of any other state according to a 2009 study (though it’s a solidly red and majority Mormon state). Only 29 percent of Americans consider watching porn “morally acceptable,” and only 39 percent would “oppose legal restrictions on pornography.” However, between 75 and 80 percent of Americans age 18 to 30 report watching porn at least once a month, and a 2015 Marie Clare study of people 18 and older found that 92 percent of respondents watch porn at least a few times a year, and 41 percent at least every week. Statistically, then, a good number of those who find porn “morally unacceptable” and wouldn’t necessarily fight against anti-porn laws watch porn themselves. In the same vein, there are a number of famous cases of politicians and activists with anti-LGBTQ+ standpoints later being revealed as LGBTQ+ themselves.

So why the hypocrisy? Why do a considerable number of Americans support legislation and rhetoric against sex acts they themselves enjoy? The answer lies squarely on the shoulders of the country’s odd relationship with sex and the public discussion of it. In the US, hyper-sexualization is not simply tolerated but rampant. Everything from M&M’s to sparkling water seems to ascribe to the idea that “sex sells,” their sexed-up ads running on television in plain sight. But once a certain fairly arbitrary line is crossed, the conversation is seen as “too explicit” and gets tucked away in the corner. This creates an environment where pornography, masturbation, sex toy use, and homosexuality are seen as shameful, leading to the statistical discrepancies laid out above. Indeed, in that same Marie Claire poll, 41 percent of respondents said they “don’t want anyone to know about” their porn watching and another 20 percent feel “embarrassed” and “ashamed afterward.”

The don’t-ask-don’t-tell culture around sex in the United States makes it is quite possible that support for sex-based legislation comes more from perceived societal pressure than from personal concern about the issues at hand. In other words, there are potentially more people who support restricting pornography or the sale of sex toys simply because they feel that others expect them to, even if they personally use pornography or sex toys, than there are people who don’t participate and find said actions immoral enough to be worthy of legislative restriction.

American public and social discourse about sex is an unruly, multi-faceted mess, and not one that can be untangled in a day. But if attitudes around sex were to thaw, and people were free to talk more openly about their habits, the stigma and taboos surrounding certain aspects of sexuality – many of which are overwhelmingly common and actually healthy – could be eliminated. This change could come from the top down, with politicians and medical professionals emphasizing the need for healthy sex discourse, or, more likely, from an effort by the populace (which may already be underway) to tear away the curtains. New sex education programs – which are far easier to talk about than actually implement – could put more emphasis on the healthy aspects of sex and sexuality. Celebrities could also speak out, using their platforms to acknowledge the realities of human sexuality. If all this were to happen, eventually laws could be pulled back, and politicians could potentially stop feeling pressure to espouse hypocritical views on sexuality. Maybe then Ted Cruz could truly act on his belief that “consenting adults should be able to do whatever they want in their bedrooms.”

Complete Article HERE!

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Fantastic kinks and where to find them

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“What do you two think about my cock ring?” With a baby blue T-shirt on top and bare as a baby’s bottom below, the stranger nodded down toward his crotch. A bright yellow, adjustable strap was fastened around his pink dick and balls.

“It kind of looks like a watch.” I said abruptly, a bit taken aback by his appearance. I was more modestly dressed in a flowery lingerie set, a UC Berkeley lab coat tied around my waist.

In stark contrast, my close friend and Cal-alumna was wholly unfazed by his sudden, very naked presence. “You should get a figure-eight cock ring!” She advised. “One ring goes around your balls and one around your shaft.” She wore an underbust black dress which showed off her much-complimented heart-tattooed nipples.

“God, I know, right? My boyfriend got this one for me.” His velvety soft dick gently brushed up against my hand like a delicate feather boa. “I wish it was black,” referring to the cock ring.

Last week was the first time I attended Folsom Street Fair, the world’s largest event for BDSM wares and fetish culture. As our Lyft driver pulled up a street away from 8th and Folsom, a man in assless underwear sprinted toward what we could only assume was his kinky oasis. Taking up a sprawling five blocks, I marveled at bondage demonstrations, two public blowjob scenes and the strangest of them all, a plethora of Bud Light stalls.

While others were receiving the blood and body of Christ on Sunday, I received a Bad Dragon grab bag yielding two glow-in-the-dark condoms, a coupon for their high-fantasy sex toys, and their coveted collectable mini silicone dicks, otherwise known as Teenie Weenies. The sex shops and burlesque shows I attended in the past paled in comparison to the absolute spectacle and sexual liberation that embodied Folsom.

Though I have been a longtime patron of the kinky arts, the first time I ever interacted with kink in real life was through a second-hand experience of another Berkeley friend a few years ago. His experience wasn’t the most ideal, as his ex-boyfriend had cheated in order to explore his interests with more seasoned kinksters.

At Folsom, he was asked, as a Filipino man, “how are your people so smooth,” by his ex’s white kink mentor. I was horrified to hear that a seemingly more mature BDSM practitioner unabashedly fetishized Asian bodies. While the sadomasochistic community’s motto is “safe, sane, and consensual,” I realized these words couldn’t exist in a vacuum. It’s easy to forget that existing social stratifications can permeate communities we normally consider to be free of such restrictions.

This is most noticeable in “raceplay” roleplaying in the BDSM community, which frequently focuses on a slave (usually a person of color) servicing their master (usually a white person). While I definitely do not want to be a kink policer, one must note that many kinksters are white and male. Engaging with these scenes uncritically can lead to excusing oppression as simply a “fetish.”

Seeing my friend’s genuine heartbreak and confusion opened my eyes to the potential negativity the BDSM community held within its leather clad jaws. While I still enjoyed consuming kinky content, I was intensely judgemental when my friend’s old flame showed up to a 4th of July barbecue with his “daddy,” who easily looked double his age.

Despite going to Folsom accompanied by a more kink experienced friend, I still had a lot of reservations. Nevertheless, I was determined to challenge my preconceived notions towards kink’s true shades of gray.

When the same cockring man, who also happened to be white, first approached us, I steeled myself for the inevitable harassment and entitlement.

As soon as he said, “women usually don’t tell you what they like, but you two really speak your mind,” I was ready to fall back into the comfortable trap of my preexisting antagonism toward white kinksters.

Feeling defeated, I replied with, “Well, that’s also because many women are still shamed when they talk about sex openly,” and prepared myself for the excuses and false apologies.

After a beat of thinking, he said, “Oh, you’re right! I never thought about it that way.” He ended the exchange with a cheery “Happy Folsom!”

Even my friend, an active participant in kink since her teens, was surprised by the lack of nonconsensual touching and photography, which she had warned me about beforehand due to her previous experiences. Besides that and the masses of entry-level gay boys who wore the same leather chest harness and frayed jorts, the only other discomfort I faced was the oppressively hot sun beating down on all of us — the ultimate dom.

I realized Folsom wasn’t a whirlwind of perceived blasphemy. It was the first time I saw such a variety of racial demographics and age ranges congregate for a specific event. As well as that, snug among all the flogging paraphernalia were free HIV testing stalls courtesy of Trans men 4 men, Queer Asian education booths and gay-friendly doctors. Folsom Street Fair itself is a nonprofit, generating approximately $300,000 annually, and provides a home for other organizations focusing on sex education, AIDS research and kink-friendly psychotherapy, such as Planned Parenthood.

Among the genitalia, latex and leather, Folsom feels like the epitome of debauchery, but it is also inherently tied to education and charity culture. As I watched an older East Asian man lead his White partner around with a chain secured to his balls, I felt like this was the true beginning of my quest to understand the complexities of the BDSM world. Just like Indiana Jones, I will continue to uncover the lost treasures of kink with a crack of my bullwhip.

Complete Article HERE!

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‘Why won’t you have sex with me?’ A real look at disability and relationships

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Louise Bruton’s Dublin Fringe Festival show examines our ignorance and prejudices, and takes a real look at disability, sex and relationships

Louise Bruton: ‘We all have our dry spells. We all get heartbroken . . . all the emotional things, they’re all similar to everybody else.’

Louise Bruton is on her way to buy Buckfast ahead of a visit to a friend’s festival on Inishturk island. Standard. Bruton is a writer and journalist who rose to prominence with her website Legless In Dublin (leglessindublin.com) detailing accessibility issues and reviews of venues and events. As a wheelchair user, she has managed to harness a way of communicating that undercuts preconceptions, prejudices and presumptions.

Bruton is blunt and hilarious. A pinned tweet on her Twitter account is a series of photos of her hugging and dancing with Grace Jones.

But there are also rage-inducing snippets of the reality of being a wheelchair user. Sample line: “Last one on the train in Heuston. Not a staff member or ramp in sight. Doors have been closed again. Guess I live here now.” Hard to stomach, but so necessary. Bruton calls this ridiculousness out.

It’s a meditation on disability, sex, relationships, and the misconceptions of non-disabled people hold about the sex lives of disabled people

Her latest project is a show for the Dublin Fringe Festival, excellently titled Why Won’t You Have Sex With Me?, which plays September 8th-11th at the Project Arts Centre in Temple Bar, Dublin. It’s a meditation on disability, sex, relationships, and the misconceptions of non-disabled people hold about the sex lives of disabled people.

In the show, she’ll talk to the audience – “there will be a lot of interaction with visuals” – and it will also deal with sex and relationships in general.

Bruton hopes that people might leave the show checking themselves a little, wondering if they’ve ever been that person who has figuratively (or literally) “patted someone on the head, or spoken about them in front of them.”

The Fringe show is also inspired by how the media attempts to tap into the “issue” of sex and disability.

A while ago, after the Guardian ran a piece about disabled people and sex – something Bruton identifies as an “evergreen”, annual story – a couple of journalists from Irish outlets contacted her asking if she would be up for discussing the “stigma” associated with having sex with a disabled person.

We all have our dry spells. We all get heartbroken . . . all the emotional things, they’re all similar to everybody else

“That came in as a very loaded question,” Bruton says, “assuming that there is a stigma. And if there is a stigma, I’m unaware of it. I think it’s pretty unfair to blame anything going on in your love life purely on the fact of a disability. I think that kind of erases everything else about you.”

Bruton sees that story as just another entry point for discussing other people’s relationships and sex lives. Those kinds of articles, she thinks, feel like they use disability as leverage for voyeurism, “I just think it’s a really lazy way to be kind of a pervert about it!”

“We all go through the feast or famine spells when it comes to sex and dating. That’s something that applies to everyone. In the week those journalists contacted me – what if I was going through the famine time? Do I tell them that? ‘Nothing’s happening for me right now, I’m in the famine stages!’ It’s challenging that, pointing out how ridiculous those articles are. They’re done on an annual basis. There’s no evidence to support that our love lives are any different just because we’re disabled.”

“The way this is framed in the media,” Bruton says, “is that if you’re disabled and you’re not having sex, you’re going to die alone, and if you’re disabled and you are having sex, then you’re some sort of a freak or a fetishist.

“You’re put in these two categories, whereas I’m like ‘we’re the same as everybody else’. We all have our dry spells. We all get heartbroken . . . all the emotional things, they’re all similar to everybody else. The elements that do make it different or difficult, have been created by non-disabled people.

“That is the physical structure of society, where we don’t get into every single pub with everybody else in it, or nightclubs that everybody else is in. There’s also the fact that non-disabled people have a very wrong and archaic view of disabled people. They’re looking at us as if we’re completely different, whereas we go through the exact emotions as everybody else.”

Bruton is the type of person who is up the front at gigs, and when she arrives at parties, the energy in the room fizzes. Her busy social life creates the opportunity for a lot of encounters.

“People will come up to me anyway, because I’m in a wheelchair, and they’ll be like, ‘what happened you?’ And I don’t really want to go into my entire personal history and tell them, because it’s none of their business. I know a lot of my male friends who are in wheelchairs, a lot of people come up to them and very specifically ask them does their penis work.

There’s a manipulative attitude that people have towards disabled people

“I didn’t realise how bad it was for guys. That’s just not what you ask anybody. That is such a juvenile thing, firstly, and it’s just really rude as well.

“It seems to be that men are put on the spot in a much more invasive way,” she says. “People I know who are disabled and are in relationships, they have mentioned times where they’ve felt unsure if their partner is comfortable with them being disabled, and that has gone on for years.”

Bruton says that there seems to be a general feeling that disabled people “should ‘take what you can get’” when it comes to sex and relationships.

“There’s a manipulative attitude that people have towards disabled people – ‘you’re lucky to be getting anyone at all’ – and if you’ve any relationship issues, it’s like ‘you should be glad they’re going out with you’. It might create this fear that they [disabled people] mightn’t have many options so they might have to ‘settle’. Nobody should ever feel that settling is an option.”

A non-disabled person Bruton interviewed as research for the show said that if they ended a relationship with a disabled person, they would be afraid it would be because of the disability, and not a personality clash. “There’s a lot of double takes going on in people’s minds,” Bruton says, “you really are questioning how things are being perceived by other people.”

The superficiality of online dating causes issues, Bruton says. “Because the way that dating has changed – because online dating is such a big part of it now – there is a superficial element to dating now more than ever. You’re basing things on three photos and one sentence that describes your entire life.

“I’m hesitant in the online world . . . I don’t shy away from having my wheelchair in photos. The guys are immediately like ‘why are you in a wheelchair? What happened you?’ There’s no way to brush that off politely. I’ve tried.

“In real life you can say ‘oh I’ll tell you another time!’, but in a message on your phone, they find that rude, or don’t know what to say next.”

If you’re so concerned with taking advantage of someone with a disability, you should be concerned about taking advantage of all other people

As part of the making of the show, Bruton interviewed non-disabled people about disabled people, sex and dating. One word kept repeating. “The word ‘vulnerable’ came up a lot,” Bruton explains. “This is mostly men who said this. Men felt that if they were to date or have sex with a woman with a disability or a man with a disability, they would somehow be taking advantage of a vulnerable person.

“So that goes back to that old-fashioned idea of disability that we weren’t in the same schools, we were sent away to homes to live and be looked after. That idea stuck with people…

“We’re no more vulnerable than the next person. Of course there are different levels to disability. But generally, if you’re so concerned with taking advantage of someone with a disability, you should be concerned about taking advantage of all other people. There’s a lot of hypocrisy with it.”

Something that has been said to Bruton has been the idea that, “‘it takes a very special person to go out with someone who has a disability’.

“The way I interpret that, is that means you have to be a carer almost, instead of being a boyfriend or a girlfriend. I think that’s at the back of people’s minds – they think they’re going to have to look after the person, rather than just spending time with them.”

I think a lot of people see relationships as a status thing

Regarding her own experiences, a not exactly infrequent one is strangers inviting themselves to discuss aspects of her personal life with her – asking if a friend is a boyfriend, or manufacturing a love story out of nowhere. “A lot of people go straight into asking if you’re in a relationship. I think a lot of people see relationships as a status thing, that you can only be truly accepted if you’re loved in that way.”

When Bruton was on crutches before using a wheelchair, she sometimes experienced guys freaking out and backing away when they realised she didn’t just have a sprained ankle or a sports injury. “Maybe they thought I was lying to them or something. Like I was tricking them. That was the vibe I got, that I had lied to them to get their attention.”

At this point, she realises there is an advantage to being able to identify such shallowness from the get-go. It’s like an extra layer of insight to character judgement that non-disabled people may not have, “It’s a really key indicator. Someone else, it could take them a few months to find out if they’re an asshole or not, but I can find out in a second.”

Complete Article HERE!

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Well If That Don’t Beat All

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Name: MissK
Gender:
Age: 43
Location: Everett
My longtime male sub wants Me to try something on him that he saw on a web site. I’m not sure at all that it would be safe for him. It’s infusing saline into his scrotum, until they are very heavy. Any advice?

OMG, there are perverts in Everett WA? Holy cow! Who knew?

I am of the mind, as probably are you, that needle play and blood sports are best left to trained professional doms. I have no way of knowing your level of proficiency in this area, but that’s not to say that one can’t learn to infuse if one really wants to.

I once watched a scrotal infusion demonstration with utter amazement. I don’t know how to do this myself, so I won’t offer you a tutorial. However, I did notice that there are a couple “How To” videos for this fetish online. But I can’t recommend them either, since I haven’t had an opportunity to review any of them.

But since you raised the question…and, like I always say, if there’s one pervert out there who gets off on somethin’, there’s a good chance there will be a shit load of other pervs out there who share that interest. So I asked around among my more sexually adventurous friends for their advice. The predominant message was that infusing sterile saline solution into a guy’s scrotum requires a lot of time, because it’s a drip process. And that it must be done in a sterile environment to avoid complications. A mishap can cause a serious infection, which is awfully painful and it can lead to the loss of the guy’s cajones.

First, ya gotta shave the dude’s family jewels. If you nick his sack; stop right there. Ya gotta wait, until the nick heals before you try again. The infusion bag or bottle must be warmed before the infusion begins. You’ll also want the environment to be warm too, otherwise his scrotum will get all pruney, don’t cha know.

The infusion bag needs to be hung approximately three and a half feet, or one meter, higher than his nuts. You’ll need to know how to set up the infusion apparatus and bleed the infusion tube of air. If you don’t know how to do this, then you are in over your head. Don’t attempt this on your own.

Of course, you have to disinfect his scrotum with an alcohol-free Betaisodona solution. There is some disagreement on how best, or where best to sting the needle into the nut sack. But one thing for certain, be sure the guy’s dick is out of the way. Two of my experts suggest stinging between the testicles.

YIKES!! I know; I’m such a big baby. But I really hate needles. I got to tell you, all of this is giving me the willies. But hey, let’s not worry about my feelings, this is all about you and your stinkin’ fetish, right? So, by all means, let’s press on…no pun intended.

I am told that you can sting just about anywhere on the scrotum, but if you sting into a blood vessel, the dude will have a burse. Probably if he’s into this particular fetish, a little bruising ain’t gonna bother him. But, ya absolutely got to make sure you don’t puncture one of his balls accidentally. This, I understand is very painful.

It’s recommended that the first time you infuse, you ought not use a whole liter of saline. Once he’s full, so to speak, remove the needle; firmly press your gloved finger on the puncture for a few minutes, then apply a little band aide. If you really loaded him up, don’t be surprised if he leaks a little. …Now there’s a pleasant thought!

Never reuse the needle and don’t just leave the infusion bag or bottle hanging around, this will only invite germs.

Finally, you’ll be happy to know that your man’s nut sack will return to normal in 48-72 hours, as the saline is absorbed into the body.

Good luck

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How To Talk To Your Doctor About Sex When You Have Cancer

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More people are surviving cancer than ever before, but at least 60 percent of them experience long-term sexual problems post-treatment.

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So you’ve survived cancer. You’ve endured brutal treatments that caused hair loss, weight gain, nausea, or so much pain you could barely move. Perhaps your body looks different, too—maybe you had a double mastectomy with reconstruction, or an orchiectomy to remove one of your testicles. Now you’re turning your attention back to everyday life, whether that’s work, family, dating, school, or some combination of all of those. But you probably aren’t prepared for the horrifying side-effects those life-saving measures will likely have on sex and intimacy, from infertility and impotence, to penile and vaginal shrinkage, to body shame and silent suffering.

More than 15.5 million Americans are alive today with a history of cancer, and at least 60 percent of them experience long-term sexual problems post-treatment. What’s worse, only one-fifth of cancer survivors end up seeing a health care professional to get help with sex and intimacy issues stemming from their ordeal.

Part of the challenge is that the vast majority of cancer patients don’t talk to their oncologists about these problems, simply because they’re embarrassed or they think their low sex drive or severe vaginal dryness will eventually go away on their own. Others try to talk, but end up with versions of the same story: When I went back to my doctor and told him I was having problems with sex, he replied, ‘Well, I saved your life, didn’t I?’ And many oncologists aren’t prepared to answer questions about sex.

“Sex is the hot potato of patient professional communications. Everyone knows it’s important but no one wants to handle it,” says Leslie Schover, a clinical psychologist who’s one of the pioneers in helping cancer survivors navigate sexual health and fertility. “ When you ask psychologists, oncologists and nurses, ‘Do you think it’s important to talk to patients about sex?’ they say yes. And then you say, ‘Do you do it routinely?’ They say no. When you ask why, they say it’s someone else’s job.”

Schover spent 13 years as a staff psychologist at the Cleveland Clinic Foundation and nearly two decades at the University of Texas MD Anderson Cancer Center. After retiring last year, she founded Will2Love, a digital health company that offers evidence-based online help for cancer-related sex and fertility problems. Will2Love recently launched a national campaign called Bring It Up! that offers three-step plans for patients and health care providers, so they can talk more openly about how cancer treatments affect sex and intimacy. This fall, the company is collaborating with the American Cancer Society on a free clinical trial—participants will receive up to six months of free self-help programming in return for answering brief questionnaires—to track the success of the programs.

Schover spoke to Newsweek about the challenges cancer patients face when it comes to sex and intimacy, how they can better communicate with their doctors, and what resources can help them regain a satisfying sex life, even if it looks different than it did before.

NEWSWEEK: How do cancer treatments affect sex and intimacy?
LESLIE SCHOVER: A lot of cancer treatments damage some of the systems you need to have a healthy sex life. Some damage hormone levels, and surgery in the pelvic area removes parts of the reproductive system or damages nerves and blood vessels involved in sexual response. Radiation to the pelvic region reduces blood flow to the genital area for men and women, so it affects erections and women’s ability to get lubrication and have their vagina expand when they’re sexually excited.

What happens, for example, to a 35-year-old woman with breast cancer?
Even if it’s localized, they’ll probably want her to have chemotherapy, which tends to put a woman into permanent menopause. Doctors won’t want her to take any form of estrogen, so she’ll have hot flashes, severe vaginal dryness and loss of vaginal size, so sex becomes really painful. She’ll also face osteoporosis at a younger age. If she’s single and hasn’t had children, she’s facing infertility and a fast decision about freezing her eggs before chemo.

What about a 60-year-old man with prostate cancer?
A lot of men by that age are already starting to experience more difficulty getting or keeping erections, and after a prostatectomy, chances are, he won’t be able to recover full erections. Only a quarter of men recover erections anything like they had before surgery. There are a variety of treatments, like Viagra and other pills, but after prostate cancer surgery, most men don’t get a lot of benefit. They might be faced with choices like injecting a needle in the side of the penis to create a firm erection, or getting a penile prosthesis put in to give a man erections when he wants one. If he has that surgery, no semen will come out. He’ll have a dry orgasm, and although it will be quite pleasurable, a lot of men feel like it’s less intense than it was before. These men can also drip urine when they get sexually excited.

Why are so many people unprepared for these side-effects?
If you ask oncologists, ‘Do you tell patients what will happen?’ a higher percentage—like in some studies up to 80 percent—say they have talked to their patients about the sexual side-effects. When you survey patients, it’s rare that 50 percent remember a talk. But most of these talks are informed consent, like what will happen to you after surgery, radiation or chemotherapy. And during that talk, people are bombarded by so many facts and horrible side-effects that could happen, they just shut down. It’s easy for sex to get lost in the midst of this information. By the time people are really ready to hear more about sex, they’re in their recovery period.

Why is it so hard to talk about sex with your oncology team?
It takes courage to say, ‘Hey, I want to ask you about my sex life.’ When patients get their courage together and ask the question, they often get a dismissive answer like, ‘We’re controlling your cancer here, why are you worrying about your sex life?’ Or, ‘I’m your oncologist, why don’t you ask your gynecologist about that?’ Patients have to be assertive enough to bring up the question, but to deal with it if they don’t get a good answer. Sexual health is an important part of your overall quality of life and there’s nothing wrong with wanting to solve or prevent a problem.

What’s the best way for people to prepare for those conversations?
First, because clinics are so busy, ask for a longer appointment time and explain that you have a special question that needs to be addressed. At the start of the appointment, say, ‘I just want to remind you that I have one special question that I want to address today, so please give me time for that.’ Bring it up before the appointment is over.

Second, writing out a question on a piece of paper is a great idea. If you feel anxious or you’re stumbling over your words, you can take it out and read it.

Also, some people bring their spouse or partner to an appointment. They can offer moral support and help them remember all the things the doctor or nurse told them in answering the question.

So you’ve asked your question. Now what?
Don’t leave without a plan. It’s easy to ask the question, get dismissed, and say, I tried. Have a follow-up question prepared. For example, ‘If you aren’t sure how to help me, who can you send me to that might have some expertise?’ Or, ‘Does this particular hospital have a clinic that treats sexual problems?’ Or, ‘Do you know a gynecologist or urologist who’s good with these kinds of problems?’ If you want counseling, ask for that.

What happens if you still get no answers?
I created Will2Love for that problem! It came out of my long career working in cancer centers and seeing the suffering of patients who didn’t get accurate, timely information. When the internet became a place to get health info, it struck me as the perfect place for cancer, sexuality and fertility. Sex is the top search term on the Internet, so people are comfortable looking for information about sex online, including older people or those with lower incomes.

Also, experts tend to cluster in New York and California or major cancer centers. I only know of six or seven major cancer centers with a sex clinic in the U.S. and there are something like 43 comprehensive cancer centers!

We offer free content for the cancer community, including blogs and forums and resource links to finding a sex therapist of gynecologist. We also charge for specialized services with modest fees. Six months is still less than one session with a psychologist in a big city! We’re adding telehealth services that will be more expensive, but you’re talking to someone with expert training.

What can doctors do better in this area?
For health care professionals, their biggest concern is, ‘I have 40 patients to see in my clinic today and if I take 15 extra minutes with four of them, how will I take good care of everybody?’ They can ask to train someone in their clinic, like a nurse or physician’s assistant, who can take more time with each patient, so the oncologist isn’t the one providing sexual counseling, and also have a referral network set up with gynecologists, urologists and mental health professionals.

 

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