Dementia – Dr Dick's Sex Advice

There’s an urgent need for a new ethic of dementia care that supports the facilitation of sexual expression.

[P]ersons living with dementia don’t have sex. Or they have weird sex. Or they have dangerous sex, in need of containment.

When it comes to dementia and sexuality, negative language and apocalyptic warnings abound. The aging population has been described in the media as a “rape case time-bomb.” Health practitioners often respond in punishing ways to sexual activity in residential care. And the sexual rights of persons living with dementia are largely ignored within residential care policy, professional training and clinical guidelines.

As critical social researchers, we argue that a new ethic of dementia care is urgently needed, one that supports the facilitation of sexual expression.

Practitioners and administrators often hold negative and judgmental attitudes about dementia and aged sexuality

Our research at the University of Toronto and the Toronto Rehabilitation Institute-University Health Network investigates embodiment, relationality, ethics and dementia. We are motivated by a shared concern about the reductive focus of dementia care on basic physical needs, and our desire to foster a more humane and life-enriching culture of care. We have explored how the sexualities of persons living with dementia are poorly supported in long-term residential care settings such as nursing homes.

Sex and dementia in the media

When we see persons living with dementia and sex linked in the media, it tends to be in high profile cases of

Institutional policies, structures and practices must support sexual expression.

alleged abuse. One example is the legal trial of Henry Rayhons, an Iowa lawmaker found not guilty of sexually abusing his wife who at the time was living with dementia in a nursing home. Another example is the wider investigation into sexual assaults in nursing homes in Ontario.

Vital as such investigations are to the safety of residents in long-term care, we rarely see sexual expression valued or as fundamental to human flourishing.

Our research has explored how these negative representations of the sexualities of persons living with dementia are also found within long-term residential care settings such as nursing homes.

Practitioners and administrators often hold negative and judgmental attitudes about dementia and aged sexuality. When faced with sexual activity, they can intervene in threatening and punishing ways. And long-term care policies, professional training and clinical guidelines tend to ignore the sexual rights of persons with dementia.

The problem with biomedical ethics

The sexualities of persons living with dementia are considered troubling partly because long-term care polices are shaped by biomedical ethics. This ethical approach relies on four core principles: autonomy, beneficence, non-maleficence and justice. These principles support intervening in residents’ sexual expression if it will cause harm to themselves or cause harm or offence to others.

However, this approach sets the bar for practitioners’ interference excessively high. It can restrict voluntary sexual expression by residents living with dementia in nursing homes.

Biomedical ethics also ignore the performative, embodied and relational aspects of ethical reasoning. It assumes that people are rational autonomous beings. It also assumes that self-expression, including sexuality, results only from cognitive and reflective decision making. Given that dementia involves progressive cognitive impairment, persons living with dementia may be unfairly discriminated against by this approach to sexual decision making.

A duty to support sexual expression

We use a model of relational citizenship to create an alternative ethic in which sexuality is seen as embodied self-expression. It is an ethic that recognizes human beings as embodied and embedded in a lifeworld. And one that views sexuality as an important part of being human.

Social and leisure activities supportive of the development of intimate relationships are essential within nursing homes.

This new ethic broadens the goals of dementia care. No longer do health professionals just have the duty to protect persons with dementia from harm. There is also a duty to support their right to sexual expression.

We argue that institutional policies, structures and practices must also support sexual expression. These should facilitate sexual rights. We must also introduce education for health professionals and the broader public — and policy initiatives to counteract the stigma associated with sexuality and dementia.

Social and leisure activities that are supportive of sexual expression and the development of intimate relationships are also essential within nursing homes.

Of course, protection from unwanted contact or sexual harm is still important. However, freedom of sexual expression should only be restricted when necessary to protect the health and safety of the individuals involved.

Complete Article HERE!

By Contributor

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Sex remains important for many people living in aged care, but a challenge for staff and residents’ family members, writes Michael Bauer, who introduces a new guide to assist.

Sexuality is linked to wellbeing and quality of life and the need for affection, looking and feeling attractive, as well as intimacy, and sex can remain important for many people living in aged care facilities.

Growing old is not a limitation on the expression of sexuality or sexual desire and the above needs do not necessarily change because someone has dementia.

Residents’ sexuality can nevertheless often be a challenge for aged care facilities and staff as well as residents’ family members who may find it an awkward and difficult topic to openly discuss.

It can come as a surprise to some family and staff members alike, to learn that a resident still has sexual needs and this can evoke a range of responses from acceptance through to disbelief, or even disgust.

Children can find it difficult to understand and accept that their parent living in an aged care facility still has sexual desires and furthermore wants to fulfil them, particularly if they have dementia.

It can be equally upsetting for families and partners to learn that their loved one wants to spend time with someone else living in the facility. Families may struggle to understand and make sense of what is happening and why, particularly if the person is unable to verbally express their needs.

Sometimes behaviour may seem very out of character for the person. There may be a changed interest in sex, or a change in sexual inhibitions, all of which can cause concern or embarrassment for the family or partner.

To help the families of people living in residential aged care be more informed about sexuality, researchers from the Australian Centre for Evidence Based Aged Care at La Trobe University have developed the resource Sexuality and people in residential aged care facilities: A guide for partners and families.

The guide has undergone extensive consumer consultation and aims to assist family members and partners of people living in aged care facilities understand about sexuality, including for people living with dementia.

Issues covered include:

the importance of sexuality in old age
sexuality and living in an aged care facility
sexuality and dementia
sexual behaviours and their impact
how a facility can be supportive of the expression of sexuality

The guide can also be a useful resource for facility staff who need information on this topic. Initially developed in English this resource is soon to be translated into other languages.

A copy will soon be sent to all Australian residential care facilities, and it can be downloaded for free from the DementiaKT hub or here.

Funding for the project was obtained from the Dementia Collaborative Research Centres (DCRC) 3 – Carers and Consumers as part of the Australian Government’s Dementia Initiative.

Complete Article HERE!